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NAHC to Congress: Fully Fund Respite Care and Family Caregiver Support

Posted on Friday, May 3, 2019 8:12 PM

NAHC and other organizations are urging Congress to support and fund two crucial programs for people who want to remain at home, the Lifespan Respite Care Program and the National Family Caregiver Support Program. 

“NAHC appreciates the increase provided in FYs 2018 and 2019 for the Lifespan Respite Care Program. To address the growing need to support family caregivers who are the linchpin of the nation’s long-term services and supports system, we are requesting $20 million in FY 2020 for this program and $202.7 million for the National Family Caregiver Support Program.

Forty-three million family caregivers provide the vast majority of our nation’s long-term services and support, permitting individuals of all ages to remain in their communities and avoid or delay more costly nursing home or foster care placements. AARP has estimated that family caregivers provide $470 billion in uncompensated care annually to adults, a staggering amount that rivals 2018 federal and state spending on Medicaid health services and long-term services and supports combined ($582 billion).”

Although respite is among the most frequently request service by family caregivers in the United States, 85% do not receive it. “Of the nearly half of family caregivers of adults (44 percent) identified in the National Study of Caregiving who were providing substantial help with health care, fewer than 17 percent used respite.”  The same is true for families caring for family members with Alzheimer’s, adults with developmental disabilities and families caring for children with special needs.

Respite care provides great relief to families which in turn can save money and delay out-of-home placements or hospitalizations. 

Source: NAHC

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